Slow recovery very slow.. is it familiar?

Hello everyone, it has been a month since my treatement ended. After i came out of the hospital, 10 days ago it has been up and down.. some days are better than others.. yesterday i felt almost good, but today is the opposite.. fatigue, burning and stinging in the vaginal area.. mostly from inside.. the good news is the radiation dermatitis is healing but the skin is so so sensitive, feels very thin and sensitive to any touch of clothing..

i would like my energy back but it is so slow.. so slow.. and discouraging not to feel like myself.. how long this will last?

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I'm sorry you are suffering so.
I would suggest to check thyroid, it helped me to take Rx for it, as chemo crashed mine. Of course, chemo in general, can ravage the whole body.
I wore boxers long after treatment, and had washable fleece pieces in bed for the target zone.
It does take a long time to recover energy, but your burns were extreme, and I hope you can be patient and do sitz baths, if not bathe the whole body; maybe some massage on a regular schedule.
Take care!
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Chemo also crashed my thyroid. Doctors told me I should be feeling better after treatment but could barely open my eyes, had no energy and was sleeping all the time. Not to mention I could not function mentally.
Easterly likes this comment
I hope you are better with Rx; it took a couple years of Rx, to get energy level (and depression) in check.
Your story will be recognized by many! IT took me several months to really start feeling good...One Day At A Time, which is a pretty good motto for these strange times...Ask your team about thyroid as Easterly suggests, and make sure you are getting good protein in your diet. A Hug!
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Very much normal for this treatment.
I finished in July and didn't start feeling like myself until about October. I did end up with blood clots in my lungs and legs so that didn't help.
You will get there just know it's a journey not immediate.
Be good to yourself 🙂
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My oncologist warned me it would take a full year to feel like I had my energy back, and she was right. She also gave me good advice that I shouldn’t look at progress from day today or even week to week, but look back at a month ago and see how far I had come with my recovery. And you had a very difficult time with your treatment, so it’s going to be baby steps, but rest assured that you will feel better a month from now than you do today!
Eva, as others have said, your first few months after treatment are predictably a bit difficult. We’ve all been through that, but it does get better! Please try to hang in there and know that with care and rest you will get better. Do try to get into a regular cardio exercise program of some sort will make all the difference!
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Your story sounds so familiar, but I'm glad to hear that you are starting to heal. Are you taking anything to manage the pain? My doctors predicted that recovery was at least twice as long as treatment. So give yourself a good 12 weeks, at least. I ended my treatment at the end of February (2018) but could not do anything in March and April. By May, I felt better, and by July, I was back at work, and even went on vacation in August. You on your way to feeling so better! Yay!! :)
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Well, I feel so badly for you Eva, the suffering seems beyond bearable at times, at least it was for me. I had a rough time for definitely 6months After last treatment They say the radiation continues for that long after treatment ends and I surely felt that was right. The good news is that it continues to shrink any tumor still there, if any.

I honestly felt like death going thru txs. Especially starting maybe 3rd week in. There is no explaining to those who have not had our txs. What it's like, which is why this blog helped me so much.

I was still in a very rough time at the time schedule you are at now, so try not to expect too much yet, just eat the best you can, do whatever brings you laughter (I watched comedy shows), and don't expect much right now. Your body has been put thru Hell, and it takes time to climb back up.
The good news is you will get there, and you have us here to offer support as you make that slow, but upward climb.
Easterly likes this comment
It took awhile for me to start feeling better, but little things would improve along the way. Try to be patient with your body, it's been through a lot. Here's hoping EVERY day will be a good one for you real soon!
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I wholeheartedly agree with everyone’s post here. I finished my treatment in April of this lovely year and I’m Just starting to feel like my self again as far as my energy level. Obviously still dealing with am issues and the pain, but can see a big improvement. Take the best care of yourself possible, be gentle to yourself, .The hardest part is over, and you definitely had a tough go.
Take care!
Easterly likes this comment
Hi Eva,
Day by day. Some days are more forgiving than others and everyone has different experiences. I would 'encourage' yourself to do a small act of fitness each day. That could be a walk around the backyard a couple of times or ten minutes of nonstop walking on a loop inside your house. My point is something physical everyday actually builds up your strength and stamina. I was also eating watercress and turmeric everyday, as these two have such amazing natural properties plus plenty of water. I'm so glad you're over the worst of it. Start planning for a dream vacation and have a goal to take it. Much love and hugs, Lisa
Easterly likes this comment
Like you I had a really hard time with the treatments. I had to take a weeks break because I was so sick! I am 11+ years out now and praying that I stay good as well as praying for everyone here. It took me almost 2 years to get most of my energy back but I have never gotten back to my pre cancer self. This could also be from getting older lol but my mind doesn't want to hear that. Take care and you are doing great and it will only get better!
Easterly likes this comment
Its so good to hear your triumph!!
Eva, like the others, it was months before I felt halfway decent. It probably doesn’t help you to hear about the time frames, but at least you know what you’re going through is not unexpected. I love Julie’s advice to not “...look at progress from day today or even week to week, but look back at a month ago and see how far I had come with my recovery...“ That approach will help you appreciate how incredibly far you’re going to go in this journey. And we’ll all be with you. Also, If you haven’t already, you may want to see a GYN regarding the stinging issue. Perhaps there’s a salve of some sort that can help. 🤞🤞
I’m so glad your done with treatment and having good days. The energy comes back very slowly. Over months. My skin still feels very sensitive and I’m 3 yrs out. But everyone is so different. Hugs!!!
You posted this a little over a month ago, so I hope by now you're feeling somewhat better. But don't rush it. I returned to work about a month after I finished my chemotherapy and radiation, and looking back, I think it was way too soon. I was out of breath and sweating just from parking my car and walking from the parking lot into my office. I had to ask coworkers for help lifting and carrying thing, and I have never been one who can easily ask others for help. It took me at least six months after treatment to start feeling anything close to myself again. I took yoga classes to help with flexibility and because I find it meditative. About a year after treatment, I found myself jogging and riding my bike and doing things I thought were never going to happen for me again. So it will happen, but give yourself time to heal. Your body has been through a lot, and maybe it just needs you to rest for now.
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Vital Info


July 2, 2020


May 19, 1956

Cancer Info

Anal Cancer


June 30, 2020

3.1 - 4.0 cm

The disruption of what I perceived as normal. The Robber of joy and happiness,

Who your friends and relatives are.. what they are made of..

just be there and listen

no need of gifts i need your support

Abbotsford Cancer Centre

from people who experienced it.. all tips are welcome

from people who traveled this road.. please help.



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